After more than a year of writing, collaboration, and editing, a consensus management guideline for BPAN has been published in Developmental Medicine & Child Neurology, a prestigious journal that should bring more attention to BPAN. Led by Dr. Jenny Wilson from OHSU, authors from several institutions, as well as three BPAN parents, all contributed to this important document. This paper will help support clinicians by guiding the diagnostic process, management and surveillance at different ages and stages of BPAN. We hope it will serve as a valuable resource for families who often become advocates for their children.
You can also listen to a podcast by Allison Gregory about this guideline here: Podcast on Youtube