Clinical studies for several NBIA disorders are currently under development and will be launched in near future.  Subjects will have the option to enroll online and participate from home by completing a series of patient-reported outcome measures every 6 months.  A more in-depth natural history study, involving annual visits to OHSU, will also be available.   To receive updates about new studies and recruitment, please register with our site.

Now Enrolling:

Coming Soon: Other NBIA online studies