This article and other news can be found in the latest issue of our newsletter which can be downloaded/viewed here: February 2021. In May, BPANready turned 2 years old! It has been the fastest enrolling of our natural history studies. We broke 100 participants in last February 2020! We have also received 69 research blood […]
Read More >>Category Archives: news
Reflecting on three years of NBIA natural history studies
This article and other news can be found in the latest issue of our newsletter which can be downloaded/viewed here: April 2018. Back in April 2015, the very first beta-testers started participating in our online natural history study, PKANready. These early testers helped us work out the bugs and finalize the design before the full […]
Read More >>Launch of the NBIAcure Newsletter
Our team will now be publishing a newsletter several times a year to update you on our research studies and let you know about upcoming projects. If you would like to join the mailing list to receive the pdf by email as soon as it’s released, please let us know by sending an email to […]
Read More >>