A consensus management guideline for BPAN has been published in Developmental Medicine & Child Neurology that will help support clinicians by guiding the diagnostic process, management and surveillance at different ages and stages of BPAN. We hope it will serve as a valuable resource for families who often become advocates for their children. Learn more […]

Many families have asked us recently whether their children ages 16+ with NBIA should be vaccinated for COVID-19. Since the available vaccines have not yet been approved for kids under 16, it will not yet be a question for many of you. However, others with NBIA have already been offered vaccination or will be in […]