In addition to the incredible support received through local small grants and your donations to the Spoonbill Foundation, Stichting Lepelaar, and “ZZF”, the Dutch Foundation for rare diseases, all of which have truly kept the trial plans moving forward, our team at OHSU has also been awarded a large grant from the National Institutes of Health. Specifically, the Eunice Kennedy Shriver National Institute of Child Health and Human Development has awarded us funding to support running the CoA-Z clinical trial over several years in the US and Canada. Spoonbill dollars will continue to be instrumental to fund the ongoing manufacturing and formulation of CoA-Z, database development, and other costs not covered by the grant.
We would like to thank the following groups and organizations who have supported this trial:
- Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
- National Institute of Neurological Disorders and Stroke (NINDS)
- Food Innovation Center at Oregon State University (OSU)
- Collins Medical Trust
- Friends of Doernbecher
- Spoonbill Foundation / Lepelaar Stichting
- NBIA Disorders Association (NBIADA)
- Oregon Clinical and Translational Research Institute (OCTRI)