Treat Iron-Related Childhood-Onset Neurodegeneration (TIRCON) is a research consortium of 13 partners from 8 countries that brings together the existing outstanding but scattered expertise in NBIA research and care on the international level.

National Coalition for Health Professional Education in Genetics (NCHPEG) is an organization that promotes health professional education and access to information about advances in human genetics to improve the health care of the nation.

A great site where you can learn more about genetics, chromosomes, inheritance, etc.

The National Society of Genetic Counselors (NSGC) promotes the professional interests of genetic counselors and provides a network for professional communication. Their website can be used to locate a genetic counselor in your area.