Our team is excited to announce that we and several of our collaborators have developed a set of guidelines called “Best Practices in PKAN.” These guidelines provide recommendations and instructions for taking care of a child or adult with PKAN. They will be a valuable resource for patients themselves and for any doctors they may see who are not familiar with PKAN.

The document has been published in a scientific journal and you can access it here: http://nbiacure.org/our-research/in-the-clinic/best-practices-in-pkan/