Category Archives: news

BPANready Update & Feb Newsletter

This article and other news can be found in the latest issue of our newsletter which can be downloaded/viewed here: February 2021. In May, BPANready turned 2 years old! It has been the fastest enrolling of our natural history studies. We broke 100 participants in last February 2020! We have also received 69 research blood […]


BPANready has been launched!

We are excited to have BPAN families participate in this important natural history study of BPAN that will help lay the foundation for future clinical trials. The link below will take you to a landing page that explains more about how the study works and what is involved. After you look it over, click on […]